Where do your valuable TASSA donations go?
TASSA has established three tiers of funding:
1) Functionality - Awareness - Credibility
Aim: to turn TASSA into a viable recognised charity with a good membership and profile so as to gain government recognition. To have an effective selection of media interfaces including flyers, cards, TV ads, YouTube modules, print ads, patrons, comprehensive websites with online donations and attractive newsletters.
a) Keeping TASSA running... for 10 years Bev has been running TASSA almost single-handedly and helping other people just like herself while she struggles with her own battle with Sjögren's. Your donations help support with her running costs including telephone, internet, electricity, paper, photocopies, postage, equipment and petrol.
b) Creating awareness... Bev has done a great job struggling to make all the information available as well as counselling sufferers. Now TASSA and Sjögren's need to have their profile raised so that everyone knows about it, from Governments to Doctors and those who suffer from Sjögren's but who still can't find a correct diagnosis or help in living with this debilitating disease. Also to support and educate those who care for Sjögren's sufferers.
c) Gaining credibility. Sjögren's is completely unsupported by the Government in terms of recognition from the departments that support other debilitating diseases like cancer, heart disease, MS, and diabetes. TASSA needs to educate doctors, take out ads in medical journals and provide literature to a variety of medical groups. The best way to get the attention of Governments is with Membership and this is why TASSA is instigating a new Associate Membership for the inimical tax deductible amount of just $5. You can become an Associate Member on our Join page.
Once established and fully functioning with a great public profile TASSA can move forward...
2) Research - Funding - Sponsorship
Aim: to engage research groups who will work consistently to find the cause and ideally a cure for Sjögren's but also research into ways of improving the quality of life of sufferers.
a) Identify and prioritise... with Bev's help plus feedback from members TASSA will identify all the areas requiring attention to prioritise and test treatments.
b) Research and development... establish relationships with research groups and laboratories like Westmead Hospital and liaise with them in developing treatments and way to improve the quality of life of sufferers.
c) Media and sponsorship... as the credibility of TASSA grows and research begins then serious funding and support will be required. This can be achieved by extending the profile raising to include media appearances, broad based sponsorship and finding celebrity representatives to help promote the Sjögren's cause.
3) Workshops - Residencies - Centres
Aim: To provide face-to-face assistance and education for Sjögren's sufferers to get help and education in living with the disease
a) Local and interstate workshops... Bev will hold regular weekend workshops locally in Byron Shire where people can come to attend. When established and as funding allows Bev will travel to capital cities to hold workshops.
b) Live-in Residencies... eventually when the money allows, the support is available and the profile is sufficiently raised then TASSA can offer live-in opportunities for a weekend or a week whereby patients can experience a focused support environment that can address all their questions and confront all situations facing a Sjögren's sufferer including supplements, equipment, exercise, routines, food preparation an dealing with doctors.
c) Integrative Medicine Clinic… specialising in Sjögren's Syndrome and its associated diseases and Orthomolecular medicine emphasising the therapeutic relationship and makes use of all appropriate therapies, both conventional and alternate. This is achieved by a holistic assessment of a person’s health. This is done by in-depth diagnoses, where we work out an individually detailed program to achieve this outcome. Cellular Nutrition, Laser Therapy and Brain Wave Therapy will be involved in reprogramming cellular memory.
Treatment may involve changes to a person’s diet, nutrition, environment, physical & mental health and detoxification of the person’s system thereby bring the body back into balance, creating a new sense of wellbeing.
The Aim of the Centre.
Prevention of illness - for optimal health
Treatment of the whole person - physical, emotional, social & spiritual
Treatment of the cause of illness - to support the body’s healing process
Individual treatment programs - programs that work with the totality of the person to find the best approach to healing.
Behind all this effort, working with Bev and saving her thousands of dollars a year, is Multimedia Artist Japetus who facilitates all her creative multimedia needs but there is still so much more that just requires donations of money to cover real costs.